Patient-Reported Outcomes in cancer research

The PROMOTION project is an international research initiative aimed to answer key questions about the added value of Patient-Reported Outcomes (PROs) in cancer research.

This initiative led to the development of the PROMOTION Registry, that is a large database, containing information regarding, for example, the PRO assessment methodology, the statistical design and the outcome reporting of published studies in oncology with a PRO component, which are identified through systematic literature searches.

This database contains data on cancer randomized controlled trials (RCTs) and it is being enlarged to also include non-RCT studies.

Database content
Publication

Latest publications

Impact of Blinding on Patient-Reported Outcome Differences between Treatment Arms in Cancer Randomized Controlled Trials
Efficace F, Cella D, Aaronson NK, Calvert M, Cottone F, Di Maio M, Perrone F, Sparano F, Gamper EM, Vignetti M, Giesinger JMJ Natl Cancer Inst.
Investigating Trends in the Quality of Reporting of Patient-Reported Outcomes in Oncology Over Time: Analysis of 631 Randomized Controlled Trials Published Between 2004 and 2019
Efficace F, Giesinger JM, Cella D, Cottone F, Sparano F, Vignetti M, Aaronson NKValue in Health.
Past and Current Practice of Patient-Reported Outcome Measurement in Randomized Cancer Clinical Trials: A Systematic Review
Giesinger JM, Efficace F, Aaronson NK, Calvert M, Kyte D, Cottone F, Cella D, Gamper EValue in Health
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Project Team

Learn more about the PROMOTION project team members: Fabio Efficace, Johannes Giesinger, Neil K. Aaronson, Rajshekhar Chakraborty, Amélie Anota, David Cella and Francesco Sparano

Read more about PROMOTION Project Team →

Get involved

If you are interested in joining the project, and having an active role as collaborator within our international team, we are happy to consider your involvement.

Given the large amount of data collected in this Registry, there might be several opportunities for getting involved.

Get involved

Who we are

The Gimema Data Center “Health Outcomes Research Unit” has the purpose of developing and managing high quality clinical research programs mainly aimed at improving the Health Related Quality of Life (HRQOL) of patients with haematological diseases, and of contributing to continued improvements in healthcare provision.

Read more about Healt Outcomes Research Unit  →

Contact us

If you are unable to find the information you are looking for on any of our pages, please feel free to contact us using the contact details below.

Health Outcomes Research Unit Italian Group for Adult Hematologic Diseases (GIMEMA)