The PROMOTION Registry contains unique information with regard to RCTs that have implemented a quality of life evaluation, or any other type of patient-reported outcome (PRO) assessment.
Given the large amount of data collected in this Registry, there might be several opportunities for getting involved.
Joining the PROMOTION Registry as Collaborator:
If you are interested in joining the project, and having an active role as collaborator within our international team, we are happy to consider your involvement. If you have some experience in PRO research, you might be involved in one or more steps of the workflow, depending on you level of expertise in this area. As an example, you might be involved in the screening process or in reviewing relevant papers and extracting information. Of course, other types of collaborations are possible and we are happy to consider these on a case-by-case basis.
All those working as collaborators, are entailed to become co-author in one or more papers (depending on the amount of time invested in the project).
Making a scientific proposal to prepare a manuscript:
An alternative way to get involved is to propose a topic to generate an abstract or a scientific manuscript to be submitted to a peer-review journal. In this case, you might also lead the writing up of a manuscript. We welcome proposals focused on: 1) PRO methodological issues or 2) more clinically oriented aspects.
Typically, a one-page proposal describing: rationale, objectives, methods, and a time plan is sufficient.
Evaluation criteria of submitted proposals will include:
Feasibility of research plan based on data contained in the DB.
Appropriateness of the research methodology.
Previous experience with PROs in cancer research of the Investigator and/or quality of the research group making the proposal.
If a proposal is accepted, you will closely collaborate with our data managers, statisticians, and steering committee to devise an appropriate research and statistical plan.
To know more details, or request a scientific proposal template, please contact our Project manager: firstname.lastname@example.org